Wednesday, June 30, 2010
Tuesday, June 29, 2010
Secondly, I'll say that there are certain aspects of my life where I can go completely OCD.
Most of the time I'm a totally disorganized person. My apartment is almost never completely clean. My desk at work is often a disaster. My purse...well, let's just say you don't want to try to find something in it.
But when it comes to site changes and rotation, I can be somewhat obsessive compulsive about it. I wear my CGMS sensor in my thighs. I can usually get 6 to 7 days out of a sensor. Infusion sites are in upper and lower stomach, arm, and upper buttocks.
I used to use only my stomach for infusion sites. I tried my thighs, but found that absorption was not what I wanted it to be, so I pretty much stayed exclusively with my stomach. A few endo visits ago, my doctor strongly encouraged me to find new areas to use. I knew that I needed to anyway. I've heard too many stories about those who have so much scar tissue built up that they have trouble with absorption.
So I branched out. I tried my upper buttocks first. I liked it. It was out of the line of my pants, so I didn't have to worry about irritating a site. Absorption was decent. And it was an area I could reach with very little trouble.
Then I tried my arm. This was an area that required some forethought. I had to purchase a separate box of infusion sets. I primarily use the 23" Quick-Sets. But with an arm site, I knew I'd need more tubing. So when I placed my new supply order, I ordered one box of the 43" Quick-Sets. And I discovered I LOVE using my arm for a site. It's my new favorite, actually.
Here's where my OCD comes in. My pump and sensor really need to be on the same side, in order to get a good signal. So I put my sensor in my left thigh. This will get me through 2 infusion sites. Usually I use my upper and lower stomach. After this, I switch sides for my sensor and then use my upper and lower stomach on the other side as well. Another sensor, back on the left side, and I use my upper buttocks and my arm. A sensor back on the right, and infusion sites go on my upper buttock and arm on that side as well.
By my calculations, this allows 21 days between infusion sites, give or take a day or two. Basically, I'm giving each infusion site around 3 weeks to heal before I have to use it again.
I can't say the same for the sensor sites. But for now, I've not had too much trouble with them.
It totally annoys me when I get off my sensor/infusion schedule. And it happened to me this past couple of weeks. It was a combination of a site that I ripped out of my arm on accident by running into a door frame (my momma always said she should have named me Grace) and trying to get a few extra days out of a sensor because I was running low.
Today is the first day that makes sense. I am back on track. A new sensor in my right thigh. A new infusion set in my upper right stomach. Whew.
Does anyone else have something OCD that they do when dealing with their diabetes? Maybe a specific time you test? Or a ritual before you change pump sites? Come on guys....don't make me feel like a total freak. :P
Monday, June 28, 2010
And then I heard the song "Peel Me a Grape" by Diana Krall. Actually, the song is quite old and has been sung by several different people. But I didn't discover the song until I bought The Very Best of Diana Krall
So, on this Music Monday, enjoy!
Wednesday, June 23, 2010
A birthday cake for a friend's fiance. He's a cop. Obviously. LOL The coolest thing was that he chain actually turned out like a chain. It moved and everything.
A birthday/graduation cake for a friend's step-daughter. She loves muddin' (that's what we call it in the South anyway...).
My favorite part was all the "mud" I got to put on the jeep! :)
Tuesday, June 22, 2010
Saturday, June 19, 2010
Tuesday, June 15, 2010
When I was growing up (until their divorce) both my parents worked. This is an area that it really takes two incomes to make it without relying on state and government assistance. I was diagnosed with diabetes about 6 months before I started kindergarten. This was in early 1986, so it was in the days of exchanges for food, brick sized glucose meters, and NPH and R insulin that was administered twice a day. I took a shot at breakfast and at supper.
Because of my twice daily insulin regimen, my parents didn't have to worry about anyone, outside themselves, giving me insulin. But it was still a constant struggle of highs and lows, morning and afternoon snacks, and teachers that could test my blood sugar if I needed it. By first grade I was testing on my own, but still under teacher supervision.
If I had a bad low, my mother was in a job that she could, if absolutely necessary, leave to come be with me.
These were all things that helped make it easier on my parents when it came to raising me. There were no 504 plans made for me. My county didn't have school nurses until after I graduated from high school. My teachers knew the signs of a low and knew what to do if it happened. Other students looked out for me. They also knew the signs. If I needed a snack, I got it. If I needed a drink, I got it. There weren't questions about it. There was never any trouble. Or any real need for parental intervention when it came to my diabetes care while I was in school.
That being said, diabetes care has improved greatly since I was in school. There are insulin pumps, multiple daily injections, carb counting. Heck, we even realize we have to test more than 4 times a day. Because diabetes has become a constant care situation, there is a need for someone to be able to help small children with their diabetes care while they are at school. The first suggestion, of course, is that a nurse should be there to help that child.
But what does a parent do if there is not a nurse at the school? Or a nurse isn't there full-time? Who makes decisions then? Who administers insulin, glucagon, counts carbs and helps determine insulin dosages?
Those of us who live with diabetes every day realize that it take time to learn what to do, but that it is possible to do it on our own. We have to do it on our own or else move into a hospital.
Earlier this week I read two different blog posts (one at The Corner Booth and another at Diabetes Mine) that informed me that the state of California has overturned a ruling that allowed teachers and other school administration the right to help administer insulin and glucagon to diabetic students. Basically a nurse must administer all medications.
California is notoriously short on school nurses at this time. Who's supposed to help a child with the immediate care they need? Apparently a parent. But wait...don't most parents WORK? I mean, mine did. IF a family is lucky, they MIGHT be able to have a parent stay home full time. This would be nice. But in reality, you are dealing with a huge number of single parent homes and houses where both adults work.
So in a single parent home, say the parent (most likely a mother, but could be a single father) has a diabetic child. Suddenly the school says "Sorry. We're no longer allowed to take care of your child when he/she's in school. But there's a nurse here on Mondays from 10-2. How's that for you? Does that work?"
So single mom, or single dad, has to quit his job to take care of his child. And the home they owned/were renting, they can no longer afford. Not to mention they don't have insurance. So what happens then? They go into a social services office. And suddenly, because the state of California couldn't allow an intelligent adult the right now help a diabetic child, you have a family on the system receiving federal health care, probably cash assistance, housing assistance, food assistance, etc.
Please tell me how that makes sense? Please? Because I'm at a loss here.
Monday, June 14, 2010
Thursday, June 10, 2010
Wednesday, June 9, 2010
Not this time. My blood sugars have been uncontrollable at times. Running so high that I ran on 120% basal for almost a week and was still rage bolusing. Any lows I had (and they have been very few) were a result of a lovely rage bolus.
Every night my blood sugar has been spiking from between 2:30 to 4:30 am. Spiking up to the high 200s and even 300s. I've gotten so used to hearing my CGMS alarm go off at night that I have started completely ignoring it.
I can't remember the last time I slept all night without an alarm.
And basically, it's starting to wear me out. Physically, yes. But mostly emotionally. I am so sick of having to deal with diabetes right now. I've not been this frustrated in a while. At least not this frustrated for this long.
I'm sick of counting carbs and hearing alarms and not knowing what I'm doing wrong. I'm sick of worrying about my A1c and what the highs are doing to my body. I'm tired of feeling like I have no control over anything. I'm sick of having to remember to refill prescriptions and having to deal with insurance companies who want an "authorization" for my sensors even though I'm down to 2 and don't have time to wait on them.
This is one of those times when I wish I could have a vacation. Tina over at ACT 1 Diabetes wrote a blog post that says everything I am feeling. She's got it.
So basically, today I just want to say that Diabetes, you can take a hike.
Tuesday, June 8, 2010
I love yellow squash and zucchini, so when I saw this in the magazine, I knew I had to make it.
I had to change a few things up, like changing some spices (the spice it called for, I couldn't get at my local Wal-Mart & was too lazy to hunt for it all over town). But overall, I think it turned out pretty good. My version:
The carb count on the recipe said a serving was 5 grams of carbs. I also made some lemon pepper chicken and a green salad. I thought it looked kind of pretty:
Thursday, June 3, 2010
Estelle Getty, Rue McClanahan, Bea Arthur, and Betty White
Something all of the "Golden Girls" had in common was that they, at some point in their lives, did theatre. Which brings me to my topic, and the title of my post.
Why I love live theatre. There are probably a million reasons that I could name. But the biggest one that I can think of is the intimacy. If you've ever seen a play or musical, even a school play or a local theatre production, you can understand what I mean when I say that live theatre is intimate. Watching a movie, or television show is not very interactive (unless you're like me and like to yell at your TV alot). You sit. You watch. You watch again on rerun or DVD. And every time you watch it, it is exactly the same.
With theatre, you never know what you're gonna get. Sometimes it's a misstep in a dance number, or a giggle from an actor, and a missed cue or line. Sometimes the show goes off without a hitch. But either way, you are in the room with the actors. Not in the room with the TV. Depending on where your seats are, you could be a few feet away from them. But sometimes, just being in the same room is magical enough.
I've been blessed to be in the same room with actors like Catherine Zeta-Jones, Christine Ebersole, Delta Burke, B.D. Wong, Kristin Chenoweth, Sean Hayes, Laura Bell Bundy, and Rebecca Gayhart. And most importantly, I've been in the same room with the multi-talented and legend Angela Lansbury.
You may ask, "Is that why you go? To see famous people?" Nope. Not at all. The first time I saw Kristin Chenoweth she wasn't famous. I had no idea who she was. Same goes for B.D. Wong. I had no clue who Christine Ebersole & Rebecca Gayhart were when I saw them. I will admit that some shows I pick because of who's in them though.
Delta Burke, Rebecca Gayhart, Lily Rabe, and Christine Ebersole in a scene in Steel Magnolias
Catherine Zeta-Jones & Angela Lansbury in A Little Night Music
At each show I see, I think to myself, "This will never happen again. This show, exactly as it is, with these actors and this audience, will never ever happen again." That misstep. That ad lib. That glance at the audience member in the front row. It will never happen exactly like that ever again. In a way, each and every show is a part of history. And I believe that's part of what makes theatre so exciting. You feel the excitement of history being made. And when you're in a room with several hundred other people and some very talented actors, the energy and excitement is contagious.
I know it may sound like crazy rambling, but this is part of the reason I love live theatre. As we lose more and more Hollywood (and stage) talent, it's a honor to be able to say that I've not just seen their movies or TV shows. But to say I've seen them live and in person. Even shaking some of their hands and getting autographs. Not everyone can say that. So even if the star you're seeing the the star of their high school production, I encourage everyone to go experience the wonder that is live theatre. Because you'll never know what you'll get.