Fast forward to 2:30 this morning.
My pump was buzzing. I usually don't hear the beeps (I'm a hard sleeper), so it wasn't much of a surprise that the vibrations were what it took to wake me up. I looked down and low and behold, there was a "No Delivery" message. And immediately I knew it was right. My mouth felt like cotton, my head hurt, I felt like I had walked across the desert and was in desperate need of a drink...and a trip to the bathroom.
I got up, turned on the light and began to gather my items for a site change. I didn't even bother checking for ketones when I went to the bathroom. A quick blood sugar test showed my blood sugar was 387. I knew I had ketones. Didn't need that little stick to tell me.
What bothered me, first off, was that there was no kink in my cannula. I took a picture to prove it.
The second thing that bothered me...well, I probably wouldn't have noticed it if it weren't for my CGMS. I noticed, on my screen, that I'd been VERY high for a long time. Several hours. Why hadn't I heard (or felt) my CGMS telling me that?
So, then I went on to check my Alarm History. It showed that the first "No Delivery" alert came at 11:46. Another at 1:28. And the last, the one I finally heard/felt at 2:24.
I'm even more confused (and sad) at the way this new Revel pump alerts to nighttime lows and highs. During the day, I hear my beeps. There are no problems. I LOVE the fact that it give high and low predictions and that it notifies when you are quickly falling or rising. These were the main reasons that I upgraded to the Revel from my MiniMed 722. Knowing what's happening before I hit my high and low markers can help me a lot in keeping myself in range. I know that.
But, and this is a big but that has had me contemplating switching back to the 722, the alert system is not that great for when I'm asleep. And that's a MAJOR reason that I need those alerts. I'm an adult. Until recently, I was living alone. I need those alerts. On the old 722, if you didn't turn your beep off, it would wait a minute or so and beep again. After about 5 minutes of that, it would switch to the continual beep (without a break, so that it was more like a siren), and then, if you still didn't get it, it would start to vibrate. And continue to do so until you turned it off.
That saved my life a couple of times with lows. But, with the new Revel, the vibrations don't work that way. It vibrates for about 5 seconds and then stops and doesn't do it again for a while. I'm not sure how long. Maybe around 5 minutes.
That causes a major problem for people like me who need something to pull us out of a deep sleep. The constant vibration always woke me up. I'm usually laying on my pump (sadly), which is a major part of the reason I can't hear the beeps anyway. And if that constant vibrations isn't there....well you get what I got last night. Or worse. What if it'd been a low, instead of a high? I could have gone into a seizure or anything.
Or, what if I hadn't felt that last vibration at 2:30 this morning. What would another 3.5 hours of no insulin done to me? That would have been a total of 7 hours without insulin. As it was, I went 3 hours without insulin, and who knows how long before that without adequate insulin (before the "No Delivery" was triggered).
This morning, I did check my ketones when I got up. Only "trace," thank goodness. My blood sugar was sill 217. More boluses. More water to drink. More trips to the bathroom to make.
Yet I can't help but think about how this could have gone differently (better or worse). And both bother me. So, this is my message to Medtronic:
Fix this problem!
I love MiniMed too much to just walk away from it. Besides, how would I know if anything else was better without trying it first? The point is, I love MiniMed. And I know that this is just a choice they made when designing the new Revel. But I'm telling them it was the WRONG choice. And they need to figure out a way to fix it. Because someone's life could be hanging in the balance.