Tuesday, May 27, 2008
Grieving and Diabetes
Illness is also a time when people experience grief. I've often heard about people going through the stages of grief after being diagnosed with cancer or some other life altering illness, whether it be terminal or not.
Being diagnosed as a very young child, I don't believe I experience the stages of grief in connection with my diabetes until I was much older. In fact, it was after I got out of college and got my first job that I really felt like I dealt with my grief with my diabetes.
I have noted before that I remember very little of my life before diabetes. I was only 4 when I was diagnosed, so in most ways, diabetes has just always been. It's always been present. It's always been a part of my life. And diabetes has always been in my mind, my life, and almost every aspect of my life.
Until I was out of college, I don't ever remember being mad about having diabetes. I had times when it annoyed me, sure. But I don't ever remember that anger that is deep and hot and burns you on the inside. When I got my first job I realized, in many ways, how far reaching my diabetes truly is.
Every job I ever take has to have health insurance considered. I will most likely never be a stay-at-home mom, or have the job I have always wanted (to own a day care center). I will always have to interview my employers about their health coverage and their policy on sick days, eating while at work, and taking necessary breaks.
When I realized this late in 2004, it made me very sad and very very angry. I always knew these things, but the reality of them hit me very hard during this time in my life. By early 2005 I knew I was going to loose my job teaching (my contract wasn't renewed). I couldn't work in child care anymore because most child care centers are individually owned and do not offer health insurance.
During this time I was also trying to take the driver's seat as far as my diabetes control was concerned. I had ignored it or just done what was absolutely necessary for far too long and I knew I hate to start doing everything I could to ward off the effects of many years of living with diabetes.
The stress of it was nearly more than I could handle. During this time I had great friends who helped me out. One friend in particular listened to me as I cried and wondered "Why me?". She supported me and loved me and gave me some great advise during this time in my life. **side note: this was way before I discovered the online world of the diabetes OC**
After some soul searching and some poetry writing (what I tend to do when stressed out) and many pity parties for myself, I took control of myself and my diabetes and began to deal with what life had handed me some 20 years earlier. A couple of years later I discovered the diabetes OC and websites like TuDiabetes.com that helped me connect with other people and helped me find ways to emotionally deal with the stresses of diabetes.
I wonder what my life would have been like had I been diagnosed later in life. At 12, or 17, or 21. Would the grieving process have happened earlier? Later? I'm not sure.
I'd really like to hear from others and when and how they dealt with the grieving process of having diabetes. I know there are others who have gone through similar situations and I would like to know how it effected you.
Thursday, May 22, 2008
Doctors, Vacation, and Birthdays!
Monday, May 19, 2008
Cara: iRobot
Thursday, May 15, 2008
Tagged!
Rules:
Once you’ve been tagged, you have to write a blog with 10 weird, random, facts, habits or goals about yourself. At the end, choose 6 people to be tagged, list their names & why you tagged them. Don’t forget to leave them a comment saying “You’re it!” & to go read your blog. You cannot tag the person that tagged you, so since you’re not allowed to tag me back; let me know when you are done so I can go read YOUR weird, random, facts, habits and goals.
1. I like to eat my food from smallest to largest. Little, broken chips first, whole chips last.
2. I've always wished I could be on Broadway. A nice dream, but probably never gonna happen.
3. I am hoping to travel to Europe someday. Also may never happen, but I can dream, right??
4. One day I hope to finish cleaning out my "spare" bedroom. I have to get rid of stuff and actually turn it into a bedroom. Someday....
5. I have the goal of loosing 20 pounds. Doesn't everyone say that? But really, I will. Someday.
6. I have a horrible sense of direction. Really. I can travel the same road a million times and I might still get lost. I can't give directions either.
7. I just nearly can't live without my Diet Pepsi. Donna has her Diet Coke. I have my Diet Pepsi.
8. I have a goal to someday own my own home. I want to be able to decorate the way I want, paint the way I want, and be able to go HGTV crazy on my living quarters. Sadly, I can't do that when renting.
9. I have a fantasy that all of my friends and family will live in the same town. I call it a fantasy cause I know it will never happen. It's a weird thing to want, but I do.
10. I love getting mail! Not e-mails or text messages, or myspace messages. Just plain ol' stamp on a letter in the mailbox mail. It makes me smile.
So, I am off now to find 6 more people to tag. Wish me luck.
I ran out of people at 5... Sad, I know. Sorry.
I picked Vivian because she's practically my neighbor, even though we've never met.
I picked Jillian because she's always lots of fun. And she's very honest.
I picked Kelly cause she makes me laugh.
I picked Naomi because she's practically one of my best friend's neighbors.
I picked Araby62 because she shares my love of all things 80s.
Wednesday, May 14, 2008
Craziness

Saturday, May 10, 2008
My Mother
My parents went through a great deal to get me. When I was born, I was a month early and in serious health. The doctors who called to tell my mother that I was in the world, also told her not to bother coming to California to get me because I wasn't going to make it. My heart had a valve that was malfunctioning. Wednesday, May 7, 2008
What Do I Do Now?

Monday, May 5, 2008
Diabetes in the News
First, last week I read this title: Study: Pregnant Women With Pre-Existing Diabetes Doubles. This article was basically a localized study that did not distinguish what type of diabetes the women had. In the article is stated that such pregnancies were very high risk and should be planned. This study did not show how many of these pregnancies were planned either.
Here are my thoughts on this: How do they know that the pregnancies weren't planned? Could the increase in diabetic pregnancies be from the increase in diabetics in general?
None of these things were addressed in this story, so I'm not sure. I do know that before the past couple of years, I have always said that I didn't want children; that I wanted to adopt. This was for numerous reason. I don't really like to get into them, especially now, when my thoughts on pregnancy change on a weekly basis. Maybe now, that more women are seeing successful pregnancies, other diabetics aren't as concerned about pregnancy.
Second article: Denver Broncos quarterback Jay Culter has been diagnosed with type 1 diabetes. I hate to hear that there has been another added to our ranks. It makes me sad. Yet, in spite of all of this, his coaches, and he are continuing to say that this is not the end of his career. This gives hope to others who think that diabetes may limit them in what they can do. So, let us wish Jay Culter luck as he joins our ranks and the ranks of us pumpers. It is with a heavy heart that I welcome you to our world.
Third article: FDA study: Insulin pumps linked to injuries, deaths in teens. I got to work this morning and read this on a news site. I nearly stroked out! The FDA looks at such a limited area in this study that they are pulling out the bad instead of looking at the overall benefits of insulin pumps. Any time you deal with medications of any kind, you are looking at the possibility of adverse affects. This is just standard. You deal with this also with a machine, that always has the chance of breaking, no matter how good it may be. It's not perfect. Add in teenage hormones and the sometimes lax care of diabetes (I went though it too!) and you can have children that are injured or die. But this can go with adults also. Instead of giving a well rounded report, this gives a very narrow look at one aspect of insulin pumps. And it allows the general public to have a negative idea about insulin pumps and diabetics in general. I also think that it might give a negative idea to parents of diabetics or diabetics who might be considering the pump, and haven't made their decision yet.
Fourth article: Government Report Answers Who Lives, Who Dies in Flu Pandemic. In regards to this article, it was a guideline of sorts that was set out by a task force of government and medical professional in the case of a widespread flu pandemic. In the case of this, it could be a bad thing for some diabetics. Here were the guidelines of who would not receive treatment if treatments were not widely available:
— People older than 85.
— Those with severe trauma, which could include critical injuries from car crashes and shootings.
— Severely burned patients older than 60.
— Those with severe mental impairment, which could include advanced Alzheimer's disease.
— Those with a severe chronic disease, such as advanced heart failure, lung disease or poorly controlled diabetes.
There's the big diabetes word. The one thing that gives me comfort is the fact that I have pretty good control of my diabetes. My A1c has been below 7 for some time now and I have no longstanding complications from my almost 23 years with this disease.
I guess this is a good kick in the tail for those who don't take care of themselves. This could be something that might make someone take control. Let's hope so anyway.
Now, we all know that we may go another 6 months before this much about diabetes makes the news. But this past week or so has been so full of this that I have been surprised.
Thursday, May 1, 2008
Spray Tanning and My 100th Post
The tan turned out great. I got back to the vehicle and put the new site in, no problems. Then we went to Old Navy to do a little shopping. In the Old Navy, I decided I wanted to try on an outfit. When I got into the dressing room and took off my shirt, the site was just laying there. Not attached to me at all. I didn't rip it out. I would have felt that. It had just fallen off.
Apparently, spray tan and sticky don't get along. Luckily, I had my emergency set that I carry in my purse and I could change it quickly. Before I put the second site in, I used and alcohol pad to prep the site (while successfully removing all the tan from that small area of my body) and had no more problems.
So ladies, if you get a spray tan, do one of two things, leave the site in and just disconnect. Or use an alcohol pad to prep the site before you put the new one in.
By the way, this is also my 100th post. I wondered if I'd ever get here.
Wednesday, April 30, 2008
Weddings, Birthdays, and General Stressors

I have been, as I mentioned in a previous post, been dealing with a much larger insulin intake than I am used to. The past couple of days have been decent, blood sugar wise. I haven't had a number over 200 and have averaged, both days, below 140. I can't complain. This has been a little bit of stress relief, since I have been so worried about my blood sugars running high and my insulin intake. Tuesday, April 22, 2008
A new meme that made me smile and a change in insulin intake.
1) I love music of all kinds. How it makes me feel and makes me express my emotions.
2) I love the smell of fresh cut grass.
3) I love sitting on the bank of the lake watching the water and letting time pass with no concerns.
4) I love the feeling I get when I am watching a play. There's nothing in the world like live theater.
5) I love the feeling of taking a nap on Sunday afternoon after church.
6) I love to see things I've never seen before and go places I've never been before. Travel is something I wish I could afford to do much more of.
7) I love to spend hours in a book store just wandering around looking at random books and reading the book jackets.
8) I love live music. I love to see concerts of almost any kind. This relates back to #1.
I just thought this was a fun little meme. I could go on and on about things I love. But I won't. Currently, I am dealing with major stress that I am almost positive is effecting my insulin intake. For the past 2 years that I have been pumping, I have averaged between 40 and 48 units of insulin intake per day. Some days, of course, there might be a little more or a little less, depending on what's going on around me. But in the past 30 days, I have had around 20 days of over 50 units per day. Some days there have even been over 60 units. The reason I think it is stress related is because (obviously) I am very stressed, but also because my basal rates seem to need changes except at night. This would be when I was the least stressed, since I would be asleep.
CGMS has helped me see these patterns, but I am at a loss as to what to do about it. I had an appointment yesterday with my CDE. She wanted to make some changes, but I convinced her to let me wait until June to do any of these changes since my life is going to calm down (hopefully) at the end of May. I have another appointment in mid-June with my CDE. And an appointment in May with my endo.
I have usually seen an increase in weight when my insulin intake goes up. This has not been the case this time. I have actually lost weight. Not much, but enough that it doesn't make a whole lot of sense.
Maybe things will change after May. Maybe things will settle back down in my world and my insulin intake will go back to what it was before.
Let's hope.
Monday, April 14, 2008
Raise Your Voice!
This is my perspective on Type 1 diabetes. I will have been a Type 1 diabetic for 23 years in just a few months. In many ways, it's all I've ever known. My memories, pre-diabetes, are few and far between.
I have shared stories on this blog in the past about my diagnosis. I have shared tales of good days with diabetes, and bad days with diabetes.
I have shared the frustrations of many other Type 1's, as we are too often grouped in with Type 2 diabetics, and told to "exercise" or "quit eating junk foods".
In this online world, I have found others who share my triumphs, my trials, and my daily life that is constantly wrapped up in diabetes.
My greatest desire is to have a more common understanding of diabetes, both Type 1 and Type 2, in the media and the general public. I want people to understand that I don't have "sugar", as many people like to call it here in the south. I have an auto-immune disease known as Type 1 diabetes that will stay with me for the rest of my life, unless there is a cure.
But there are a host of other wishes I have for my diabetes, and diabetes in general:
- I wish to be able to take a job without the need to interview my employer about insurance benefits.
- I wish to be able to tell someone I have diabetes and have the look at me like I am going to die.
- I wish to be able to keep the around $120 per month that I spend on out of pocket costs for my medicine. (This does not include my insurance premiums.)
-I wish to be able to go on a trip without taking an entire carry-on bag of nothing but meds.
-I wish to be able to know that if I chose to have children, they will not have to live with this disease like I have.
- I wish for my mother and father and countless other friends and family to not have to worry about me because I live alone.
Friday, April 11, 2008
One Year Later...
One year ago tomorrow I posted my first blog post. Inspired by Kerri over at Six Until Me, whom I stumbled across by surfing around on dLife, I ran across this world of people just like me. I knew there were other diabetics in the world. I had, after all, attended diabetes camp for 2 years when I was a child. I even knew a few Type 1's and a couple of Type 2's in my every day life.
But Kerri introduced me to this world of the Diabetes On-line Community. Her Blogroll is what led me to enter this world. I began reading about other diabetics and their lives. I ran across the blogs of parents who's children had diabetes which gave me a whole new perspective on what my parents lived through (and still do) when I was diagnosed with diabetes.
I met new people, though not in real life, like Amylia and Donna and Jillian. I discovered what a sussy was, learned about new pump sites, found the wonderful IIMC's (also known as pump packs), and discovered the generosity of virtual strangers like Bernard.
This community has meant so much to me in so many ways. I feel like I know most of you, even though we have never met. The common thread of diabetes connects us.
I know I don't blog as often as some others do, but I read faithfully. Even when I am not blogging, I am always getting support from your posts.
So thanks to all those in the d-blog world. You have become an important part of my life in the past 365 days, and I hope to continue to see you all here on-line as our lives and trials with diabetes continue.
Wednesday, April 9, 2008
A Long Week....Already


Thursday, April 3, 2008
Blessings in Times of Stress
During this time, CGMS has been a really good thing for me. I took it off for about a week at one point and just couldn't handle life without it. I admit it, I've become spoiled. I can do without it, I just don't want to. It's not perfect, but has really helped me out.
One night (when I did not have the CGMS on) I woke up and couldn't go back to sleep. After thinking I should test, I found my blood sugar was 48. With CGMS, it wouldn't have gone below 65. And I wouldn't have felt like crap the next morning.
Emotionally, I have been going through quite a bit as of late. This is another reason I haven't really been blogging. I hate to get on here and complain all the time. Due to the things I have been stressing over, my blood sugar has been very crazy at time. This also makes me very glad I got the CGMS.
And even though I haven't been posting regularly, I have been reading pretty regularly. All of your blogs out there in the diabetes OC have really helped to keep me grounded and knowing that I have a place I can come to and find friends who deal with life every day, just like I do.
I am truly blessed, and I have been trying to remind myself of that daily. For all of you out there who have wanted to know when I would post again, here it is. And be prepared for more postings in this month of April. I am going to get back on the wagon and rejoin this world. ;)
Sunday, March 23, 2008
Sugar-Free
Am I a "bad" diabetic for this? Should I mindlessly eat the "sugar-free" products that taste awful and cause horrible digestive issues? What is your opinion on "sugar-free"?

Monday, March 17, 2008
Happy St. Paddy's Day!

I love St. Patrick's Day. I don't know why, I just always have. It makes me smile. My friends make fun of me and tell me that it's because I'm really a leprechaun because I'm so short. I just laugh. Maybe it's true.
Due to being adopted, I don't know a lot about my family heritage. I know my mother's mother was of German decent and I believe my mother's father was of English, Irish, or Welsh decent, but I'm not sure. And I know nothing about my father's side.
So, I like to think that I really do have some Irish blood in me and that's why I like St. Patrick's Day so much. :)
I hope you have all had a wonderful day. I had a pretty decent day. I met with my Certified Diabetes Educator. It was nice. We didn't do anything major as far as changes go, but I talked with her about the ace inhibitors, my exercise and how to handle my blood sugars during this time, and about how my sensor has been working.
I really like my CDE, which is nice. We get along well and she's easy to talk to. Right now it was just more or less a way to get a second opinion and a second set of eyes on my blood sugars to see where we might fine tune. I'd really like to get my A1c lower and this may help.
Friday, March 14, 2008
Feeling Blue
Wednesday, March 12, 2008
Misconceptions
Dr. Manny's Health Quiz
Quiz Results
Your correct answers are in grey and your incorrect answers are in red.
1. People with diabetes frequently experience certain symptoms including feeling thirsty, frequent urination, weight loss and blurry vision.
Right! The correct answer is true: Not only are all these symptoms associated with diabetes, people may also experience irritability, tingling or numbness of the hands and feet and wounds that won't heal.
2. People get diabetes by consuming excessive amounts of sugar over a lifetime.
Right! The correct answer is false: Although diabetes can occur in anyone, some risk factors include family history, obesity, high cholesterol, high blood pressure and physical inactivity.
3. There is no effective treatment available for diabetes.
Right! The correct answer is false: Although there are certain differences in treatment between type 1 or type 2 diabetes, there are treatments which include having a meal plan, exercise, insulin injections and oral agents which all could help manage the high levels of sugar in the body.
4. Poorly managed diabetes can lead to heart attacks, strokes, blindness, kidney failure and blood vessel damage.
Right! The correct answer is true: By not keeping your sugars in as normal range as possible, cell destruction will begin to occur and ultimately, your overall health will begin to deteriorate.
5. Diabetes can be prevented.
Wrong! The correct answer is true: Type 2 diabetes or adult onset diabetes can be prevented by changing your lifestyle. Even small things like modest weight loss (10% of your body weight) and modest physical activity (30 minutes of exercise per day) can prevent you from developing diabetes.
