Wednesday, January 18, 2012

MTV True Life - I Have Diabetes

Wow. I just spent the last hour watching a much anticipated episode of MTV True Life. Months ago (maybe even a year ago?), MTV put out a casting call for people living with diabetes. They made it sound....depressing. And very much T2 oriented. After many emails to MTV, they rewrote their casting call and made it more universal. And slightly less depressing.

Of course, none of us actually thought that they might get it right. I'm calling it a draw. Some stuff was a really frank look at life with diabetes. Other things, I feel, were grossly misrepresented.

The show centered around three young people. Kristyn had to move back in with her parents after her health care costs got out of control. From what I could tell, she probably didn't have insurance. Or not good insurance. She was working two full time jobs, getting very little sleep, and paying for a new insulin pump on a credit card because her old one died. I feel for the girl. I've been without insurance. I don't know that my body could handle two full time jobs. I need my sleep too much.

I feel for Kristyn. She seems like a sweet girl. But diabetes is an expensive disease. Like I tweeted during the show, diabetes is expensive with GOOD health insurance. Without it... it's nearly impossible to afford.

Jen was a young girl (19, if I remember correctly), who was pregnant. She said that she'd gone to the emergency room because she felt sick and found out she was pregnant and had T2 diabetes in the same day. Immediately I wondered (and tweeted) if she was really a T2. Some people who are slim do get T2 diabetes. But with someone as young as Jen, and with a pregnancy, shouldn't doctors have checked for T1 anti-bodies? I think so. Instead, this girl spent months on many different pills trying to control her diabetes during her pregnancy.

Her doctor seemed more into scare tactics than anything, telling her if her blood sugar was too high that her baby would die. Jen ended up on insulin before the end of the pregnancy and the baby had to be taken early because he was too large. Diabetes related? Maybe. But from what they showed and made it sound like, it could have just been that the baby was broad shouldered. A friend of mine had to have her son taken by c-section because he was large. There was no diabetes involved in this.

At the end of the show it stated that Jen's diagnosis had been changed from T2 to T1 because she was "no longer producing insulin." Um, sounds to be like the had a T1 (or LADA) patient that struggled through her whole pregnancy more than she ever would have had to have struggled than if they'd just diagnosed her correctly the first time.

Matt was a college student who liked to drink. It made it sound like that he (and all diabetics) weren't supposed to drink at all. It also made it sound like he never took care of himself. I do have to say, I think Matt had the most supportive people around him of all of the "cast". He had friends who worried about him. People who urged him to test while drinking. And a doctor that told him it was okay to drink, but to be careful and have people around him that new what to do if he was acting funny.

His A1c had apparently gone up to 8.something from a previous visit of 7.4. The doctor was honest that they wanted a 7. But I think that both those numbers are okay for a person in college. Sure you'd like better. But when they were talking about it, I expected him to go in and find out his A1c was 12.1 like mine was one time in college.

One thing that really bothered me about the Matt segments was that they only showed him check his blood sugar once and it was over 400. That's something that (obviously) isn't a norm for him, or his A1c would have been way higher. I think this kid might have gotten a slightly bad wrap. While I don't encourage binge drinking, or drinking all the time for ANYONE, I think that you can drink responsibly as a diabetic and do it in such a way that doesn't totally compromise your blood sugar levels.

If Matt spikes when he drinks, should he never drink? I don't think so. I spike when I eat pizza. It doesn't mean I NEVER eat pizza, just that I do it only occasionally and that I'm ready to bolus the heck out of it so that my blood sugar doesn't linger in the high areas.

Either way you go about it, they could have done way worse on this show. I hate that they showed only negative things, because there are so many positives that can happen with diabetes. But I'm glad that they didn't bring in people who were not taking care of themselves at all and/or had one food in the grave.

MTV could have done better....but they could have done worse.

I rate this show a C+.

You can read updates on MTV's website about how all three are doing now.

And I hope that Jen, Kristyn, and Matt find the D-OC. We can help! :)

Friday, January 6, 2012

A Million Little Things

A new year is upon us and I'm sad to say that in the past month I've been rather lax in keeping up with my diabetes blog. However, I have had a day today. A day I'd like to share with you.

For the past two days my blood sugar has been running almost perfectly. I've gotten high predictor and low predictor alarms, but I hadn't actually had a high or low alarm in almost 36 hours. I have NO idea how it happened, but it did. Perfection never really lasts though. I think we always know that.

This morning I got up and took off to work. I usually don't eat breakfast until I get to work so it wasn't until I got there that I realized that I'd used my last test strip for my morning test. Strike one.

Okay, with steady blood sugars for nearly two days, I figured that I could make it until lunch w/ my fairly accurate CGMS. I'm set, right?

Wrong. About two hours before I was set to go to lunch, my CGM 3 day time limit was up. Which means I needed another blood sugar test to recalibrate. Um...uh oh.

So, I think I'll try my best to tough it out until lunch. It's only 2 hours and Lord knows I've gone two hours without testing my blood sugar before. Two hours is nothing.

Except when about an hour before lunch I started to feel low. Uh, oh. I can't drive home to get strips, so I check for a juice box in my purse...only to find I don't have one. Crap.

I make my way to the next cubical and eat a couple of handfuls of my co-worker's skittles. And wait.

By the time I got home for lunch, I'd rebounded to almost 200. And I spent the rest of the day being exhausted from the low, and somewhat sluggish.

Now having strips or even having the juice box wouldn't have prevented the low, or the rebound. But having one little thing go wrong is bad enough, but when it's a million little things it ends up being an extra hour at work on a Friday night to make up for all the work I couldn't get done today.

Diabetes can be easy. For about 5 minutes at a time. Something always comes up. A high. A low. A missing juice box. A needed reset on CGM. Sometimes they all come up at the same time.
Today was one of those days.